links to SCI sites
General SCI Information and Resources
Christopher and Dana Reeve Foundation
CDRF has information about numerous resources for persons with SCI. Some of the best resource sections include:
a free 336 page book, Paralysis Resource Guide with great information about all the conditions that cause paralysis and info about resources;
this resource guide is also available in an online version ;
Fact Sheets from A to Z;
State Resources (downloadable PDF files by state);
Conditions from A to Z;
The main website address is http://www.christopherreeve.org/
Foundation for Spinal Cord Injury Prevention, Care & Cure
The Foundation (FSCIPCC) is a non-profit educational group dedicated to the prevention, care and cure of spinal cord injuries through public awareness, education and funding research. Check out the Other Helpful Resources Page.
http://fscip.org/
Makoa Spinal Cord Injury and Disease Resources
These pages provide links to a very wide range of resources. The site was created by Jim Lubin in 1994. He is a C2 quadriplegic, dependent on a ventilator to breathe, using a keyboard/mouse emulator with a sip and puff switch to type morse codes. "Makoa" is a Hawaiian word that means "courageous".
http://www.makoa.org/
National Institute of Neurological Disorders and Stroke
NINDS has fact sheets on many issues experienced by persons with SCI.
http://www.ninds.nih.gov
National Spinal Cord Injury Association
The NSCIA has an A-Z Index of Resource Topics. Each topic has links to a variety of sites with information.
http://spinalcord.org/resources/
Paralyzed Veterans of American
PVA has a great website with a lot of downloadable guides. Their "Yes, You Can" Guide is in its 4th edition and is a standard in Spinal Cord Injury Education.
http://www.pva.org/
SCI-Info-Pages
An informative resource about a spinal cord injury or other disabling injuries or diseases of the spine. Check out the left sidebar menu for links, news, clinical trials, pictures, etc.
http://www.sci-info-pages.com/
Spinal Cord Injury Information Network at UAB
This site is maintained by the UAB Model Spinal Cord Injury Center and offers educational and research information relevant to persons with SCI, their families, and others of interest.
http://www.spinalcord.uab.edu/
Spinal Cord Injury Network
The SCI Network is Washington, D.C. area chapter of the National Spinal Cord Injury Association.
It provides support and services to people with spinal cord injuries and other mobility impairing conditions, and to their families and friends.
http://www.spinalcordinjury.net/
Online SCI Information
Aging with Spinal Cord Injury
Good information on the topic from the Rehabilitation & Research Center on Aging with Spinal Cord Injury, Craig Hospital, Englewood, Colorado.
http://www.ed.gov/pubs/AmericanRehab/spring97/sp9706.html
Pamphlets on SCI Issues
Selection of downloadable pamphlets from Northwest Regional Spinal Cord Injury System at the University of Washington.
http://sci.washington.edu/info/pamphlets/
Spinal Cord Injury Topics
The NRH Healthtown Site is maintained by the National Rehabilitation Hospital. There are many SCI health issues covered at this site.
http://www.nrhhealthtown.com/healthtown/Library/Content/Spinal%20Cord%20Injury%20Topics/index.aspx
Spinal Cord Injury Manual for Patients and Families
Informative manual from the PoinTIS Web site provided by the Louis Calder Memorial Library of the University of Miami School of Medicine (UMSM.
http://calder.med.miami.edu/pointis/sciman.html