links to SCI sites
Links to Information About SCI Research
Alan T. Brown Foundation to Cure Paralysis
Established in 1988, the Alan T Brown Foundation to Cure Paralysis (ATBF) supports scientific and medical research worldwide, and has recently directed its focus to Quality of Life issues for people living with motor disabilities and paralysis.
http://www.atbf.org
BrainGate
Brain control: scientists have the ability to decode the brain signals
for limb and hand movements so they can be controlled by
thoughts alone. Working a computer by thought is being done.
http://www.braingate.com/
http://www.braingate2.org/
Center Watch
The global source of news, directories, proprietary market research, and analysis for clinical trials professionals and patients. Provides an extensive list of approved clinical trials being conducted internationally.
http://www.centerwatch.com
Christopher and Dana Reeve Foundation
CDRF raises funds to develop treatments to restore function after injury or disease of the spinal cord. The foundation also works to improve the quality of life for people
living with disabilities through its grants program, Paralysis Resource
Center and advocacy efforts.
There is a wealth of information about SCI research
here
A great place to start is the
Areas of Research page
The main site is
http://www.ChristopherReeve.org
Cleveland FES Center
The Center studies the use of electrical currents to produce and control the movement of otherwise paralyzed limbs.
http://fescenter.case.edu
Coalition for the Advancement of Medical Research
CAMR is the nation's leading bipartisan pro-cures coalition. Comprised of more than100 nationally recognized patient organizations, universities, scientific societies, and foundations, CAMR’s advocacy and education outreach focuses on developing better treatments and cures for individuals with life-threatening illnesses and disorders,including stem cell research and somatic cell nuclear transfer.
http://www.camradvocacy.org
http://www.stemcellfunding.org
Craig H. Neilsen Foundation
This is a private foundation with the purpose of awarding grants to a broad spectrum of charities benefiting spinal cord injury (SCI) research and rehabilitation.
http://chnfoundation.org/
Dana Foundation
The Dana Foundation is a gateway to information about research of the brain and spinal cord.
http://www.dana.org
International Campaign for Cures of Spinal Cord Injury Paralysis
The ICCP is a group of organizations around the world that together fund about
$25 million a year in SCI research. ICCP produced a key document on
clinical trials and experimental treatments, available online. Members
include: Miami Project to Cure Paralysis, Christopher and Dana Reeve
Foundation, Paralyzed Veterans of America, Japan Spinal Cord
Foundation, Rick Hansen Institute, Spinal Cure Australia (formerly
Australasian Spinal Research Trust), Neil Sachse Foundation (formerly
Spinal Treatment Australia), Spinal Research (International Spinal
Research Trust) and French Institute for Spinal Cord Research.
http://www.campaignforcure.org
International Collaboration On Repair Discoveries
ICORD brings together researchers and practitioners from the basic sciences, social sciences, medicine, surgery, rehabilitation, engineering, kinesiology, education, and the humanities to facilitate the discovery, development and implementation of relevant solutions that will make a difference for people with spinal cord injury today and tomorrow.
www.icord.org/
Japan Spinal Cord Foundation
This foundation takes aim “at the liberation from paralysis,
and to promote the improvement of medical care concerning spinal
cord injuries...and at the realization of a society where spinal cord
injured persons can establish a life with independence and self esteem
regardless of the severity of their disabilities.”
www.jscf.org
Life Rolls On Foundation
This foundation was established by paralyzed surfer Jesse
Billauer to support research toward treatments for paralysis.
http://www.liferollson.com
Miami Project to Cure Paralysis
This is a a research center at the University of Miami dedicated to finding
more effective treatments and, ultimately, a cure for
paralysis. The Project has assembled a broad spectrum
of researchers, clinicians and therapists whose
full-time focus is spinal cord injury research.
http://www.miamiproject.miami.edu
Mike Utley Foundation
The foundation provides financial support of research, rehabilitation
and education programs on spinal cord injuries.
http://www.mikeutley.org
National Institutes of Health
For information about clinical trials taking place in the United
States (search by condition or diagnosis), a user-friendly listing of all federally supported clinical trials for all conditions in the U.S., sorted by disease or condition, location, treatment or sponsor. Developed by the National Library of Medicine.
http://clinicaltrials.gov
National Institute of Neurological Disorders and Stroke
NIDDR is the primary funding source for all research related to the brain and
spinal cord and provides authoritative research overviews for all diseases and conditions related to paralysis.
www.ninds.nih.gov
The Neural Prosthesis Program
The National Institute of Neurological Disorders and Stroke
supports the development of aids for people with neurological disorders.
http://npp.ninds.nih.gov/npp
Neurotech Network
The Neurotech Network, formed by Jennifer French, a C7 quad who is flitted with a device that allows her to stand and pivot from her wheelchair. An overview of many other high-tech solutions for enhancing mobility and function.
www.neurotechnetwork.org
North American Clinical Trials Network
To help select and move promising therapies from the
lab to the clinic, the Christopher and Dana Reeve Foundation has
formed the NACTN, a group of eight clinical research centers and a biostatistical center. The Network is collaborating with a similar-minded European consortium
to define the natural history of spinal cord injury, create
an international database of carefully selected spinal cord injured
persons, and fine-tune what are now considered rather crude outcome
measures for treatment. By building the infrastructure for a
global cross-collaboration, it is expected that the network will
speed therapeutic development based on the best evidence available.
http://www.christopherreeve.org
Paralysis Project of America
The project funds selected scientific and clinical studies that focus on spinal cord repair and regeneration.
http://www.paralysisproject.org
PubMed
PubMed is a service of the National Library of Medicine. It provides access
to over 12 million citations in the medical literature back to the mid-
1960s. Includes links to many sites providing full text articles and other
related resources. You may search using key word, researcher name or journal title.
http://www.ncbi.nlm.nih.gov/entrez
PVA-EPVA Center for Neuroscience and Regeneration Research
This Center at Yale University works to develop new treatments, and ultimately a cure,
for spinal cord injury and related disorders.
http://info.med.yale.edu/neurol/pva-epvacenter
Rick Hansen Man in Motion Foundation
The Foundation was created in Canada in 1988 to support spinal cord injury
research, as well as wheelchair sport, injury prevention and rehabilitation programs.
http://www.rickhansen.com
Reeve-Irvine Research Center
This Research Center was formed by Christopher Reeve and philanthropist Joan Irvine Smith to study injuries and diseases of the spinal cord that result in paralysis.
http://www.reeve.uci.edu
Sam Schmidt Foundation
The Foundation helps individuals with spinal cord injuries and other debilitating illnesses by funding research, medical treatment, rehabilitation and technology advances.
http://www.samschmidt.org
Society for Neuroscience
The Society is an organization of 40,000 basic scientists and physicians who study the brain and nervous system, including trauma and disease, as well as brain development, sensation and perception, learning and memory, sleep, stress, aging and psychiatric disorders.
http://apu.sfn.org
The Spinal Cord Injury Project
This Project at Rutgers University seeks the rapid movement of therapies from laboratory to clinical trial. This includes research to test and confirm the efficacy and safety of promising therapies, training of laboratories to do spinal cord injury research and animal care, and community outreach/education.
http://keck.rutgers.edu
Spinal Cord Opportunities for Rehabilitation Endowment
SCORE is dedicated to finding a cure for paralysis and also allocates
funds to assist young people who have been injured while participating in
sporting or athletic events.
http://www.scorefund.org
Spinal Cord Research Foundation
This Foundation of the Paralyzed Veterans of America (PVA) funds research to treat spinal cord dysfunction and to enhance the health and quality of life of people who are paralyzed.
http://www.pva.org/site/PageServer?pagename=research_main
Spinal Cure Australia
Spinal Cure Australia was established in 1994 to fund scientific research to find a cure for paralysis.
www.spinalcure.org.au
Spinal Research
This is a United Kingdom charity funding research to end the permanence of
paralysis.
http://www.spinal-research.org
StemCellAction
This organization is a grassroots group of people with chronic medical conditions
and their families and friends who believe that stem cell research
has the potential to treat Parkinson’s, Alzheimer’s, juvenile diabetes, MS,
ALS and spinal cord injury.
http://www.stemcellaction.org
Stem Cell Basics at the National Institute of Health
Info
http://stemcells.nih.gov/info/basics
Stem Cell Research Foundation
This Foundation raises funds to support basic and clinical research of stem cell therapy.
http://www.stemcellresearchfoundation.org
Travis Roy Foundation
This Foundation, named for the injured Boston University hockey player, helps people with spinal cord injuries and funds research for a cure. The foundation has awarded grants for wheelchairs, assistance with van purchases, vehicle and home modifications, exercise equipment and other adaptive gear.
http://www.travisroyfoundation.org
Veterans Affairs Rehabilitation Research and Development Service
The Research wing of the VA advances knowledge to optimize health care for veterans. The VA has an active research agenda that includes the study of pain, bowel and bladder function, FES, nerve plasticity, prosthetics, numerous clinical issues and more. Publishes the Journal of Rehabilitation R&D
http://www.vard.org